This past week I posted two “vlogs” about my daughter Kailey and her journey through life and defeating the odds.

I think I mentioned that we try to live a “normal” life and we do our best to treat her like a healthy, normal kid. But lurking in the background is this dread, that today could be the day that everything changes.

Yesterday Kailey spent the afternoon outside playing. She came in for dinner, then rushed back out to her friends. She didn’t come in with her siblings till nearly 8:30pm. Far past bedtime in our house. My husband decided it was a beautiful afternoon & they should enjoy it.

This morning Kailey woke up with a horrid migraine, complete with vomiting, light sensitivity, noise sensitivity & a new one for her… Smell… The kids cereal made her nauseous and she wasn’t even at the table.

I gave given her Tylenol, a bottle of Coke to sip on, pillows and a blanket. She doesn’t want to be alone in a room where it will be quieter and darker. She says she is afraid she will have a seizure.

Our dog Ruby was very agitated this morning and woke me up. I thought she needed to go out, but she wanted to be with Kailey. When Kailey came downstairs Ruby settled onto the love seat with her. The last time Kailey had a seizure, Ruby didn’t leave her side for days.

I sit here now, questioning myself. Do I take her to the hospital? Is this just another headache? Is this more? Do I alert the family? Do I call my husband home from work?

I am reminded that that dark fear that lingers in the background of our “normal” life, grips me by the throat from time to time & I know that our normal is just really unfair.