health

Appointments abound

I followed up with the caffeine nazi, err.. Neurologist. My legs are getting stronger, this is good!
As I was on my way, a headache snuck in. In office the light sensitivity began. I was cranky. Had taken imitrex last night and still this came on. But he saw it, and now I start low dose topamax. I’m pleased with small doses.
Verdict on leg issues and labs? NORMAL! Thank God! Possibly a virus, but nothing to worry about. Hooray!
Now, no more excuses! I need to move my ass! Doc suggested the 3 miles with the dog should start at 1.5 miles to be sure to not makes the muscles angry. Also, given the clear for caffeine, which I have been drinking anyway.
Well this was a lame post.
Tomorrow morning starts with Click Baby!

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Broke, Broke and Mad

My husband is our soul income. Work has been slow. I planned on finding a job as a waitress for weekends, but I have been a neurological mystery and am not fit to apply for a new job as I am right now.  We are broke, I am broke, and it is driving us mad. As in crazy. As in, we need income so that I can continue to see doctors and still be able to be home for my children, especially my medically fragile child. We need income to do these things so that we can stay sane.

BROKE: AKA lacking funds. AKA poor.

I am broken (headaches and leg pain, cranky gut  issues, cranky ass husband syndrome), my laptop is broken (the connector to it is cracked.), this is driving me insane therefore I am mad.

The insanity is running rampant as the hubby is home more often, and funds are low. My normal escape route is my laptop, which I apparently have an addiction to. Addicted to the laptop? But Michelle, you have an iphone and TWO desktops in the house. Surely you can connect?!

Yes, yes I CAN get connected. BUT… clearly I am spoiled. Sitting at a desk top is sort of claustrophobic. I feel like I’m in the corner. Wait, I sort of AM in a corner, facing a wall, with my back to the world. How did I live like this for so long prior to the laptop?

So, I am cranky, the husband is home and cranky, the majority of the children are in school. We can sit in the house and stare at each other, while anxious and annoyed or we could GO OUT. So, we go out. Where do we go? To stores, where we have little funds to purchase anything other than groceries. Which adds to the stress, which makes me want to eat, which makes me panic, which makes us go home. And when I get home? MY FREAKING LEGS ARE KILLING ME!

Wait! They make a pill for that!

Oh wait, my pill for that is codeine. I prefer to be cranky, weak and nervous.

I am admittedly a whiney mess. I have not talked to many people these last few days, because all that comes out of my brain is WHINE WHINE WHINE. This is not fun, nor is it who I am. But I am blogging about it, because it is me and this is my reality. <— those two sentences are an oximoron.

As always I will remind myself and you, that there is a bright side. Kailey didn’t get admitted to the hospital on Saturday. Her brain is fine, although achey. My children are fed, happy and bright. I have a roof over my head that is much easier to keep afloat than the old house would have been in similar times.

My husband being home has its upside. We get to spend some time together, discussing options, forming plans of action, bonding. He will be having his WLS soon, and we are able to get a little more in depth when discussing that, because I’m harping on him about it. Because I’m bored. But these things need said and discussed, so.. bright side… they have been.

VSGMOM confesses to being absolutely bat shit crazy. Thanks.

 

Quick Kailey update

Thank you all for your thoughts, prayers and love. Saturday was a rough day, but by the time the sun went down, all was right again. This is our life, it is full of ups and downs, and it can change on a dime.

And Poof, you are reminded

This past week I posted two “vlogs” about my daughter Kailey and her journey through life and defeating the odds.

I think I mentioned that we try to live a “normal” life and we do our best to treat her like a healthy, normal kid. But lurking in the background is this dread, that today could be the day that everything changes.

Yesterday Kailey spent the afternoon outside playing. She came in for dinner, then rushed back out to her friends. She didn’t come in with her siblings till nearly 8:30pm. Far past bedtime in our house. My husband decided it was a beautiful afternoon & they should enjoy it.

This morning Kailey woke up with a horrid migraine, complete with vomiting, light sensitivity, noise sensitivity & a new one for her… Smell… The kids cereal made her nauseous and she wasn’t even at the table.

I gave given her Tylenol, a bottle of Coke to sip on, pillows and a blanket. She doesn’t want to be alone in a room where it will be quieter and darker. She says she is afraid she will have a seizure.

Our dog Ruby was very agitated this morning and woke me up. I thought she needed to go out, but she wanted to be with Kailey. When Kailey came downstairs Ruby settled onto the love seat with her. The last time Kailey had a seizure, Ruby didn’t leave her side for days.

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I sit here now, questioning myself. Do I take her to the hospital? Is this just another headache? Is this more? Do I alert the family? Do I call my husband home from work?

I am reminded that that dark fear that lingers in the background of our “normal” life, grips me by the throat from time to time & I know that our normal is just really unfair.

life rearranged